Real Voices, Real Change: Actioning the lived experience of people with SCI through the Aus-InSCI Translation Project
April 8 2026
The Aus-InSCI Translation Project aims to drive meaningful improvements for people with SCI by translating findings from the Aus-InSCI Community Survey into practice.
The Aus-InSCI Community Survey is an international initiative and the first of its kind in SCI. Completed by 1,579 Australians across 2018 and 2019, it provides important insights into the lived experience of people with SCI. A second round of the survey is currently underway, with plans for ongoing five-yearly data collection to monitor changes over time.
Funded by the National Injury Insurance Scheme, Queensland (NIISQ), the Aus-InSCI Translation Project focuses on using these data to inform and drive system-level improvement. The project is hosted by The Hopkins Centre—a collaboration between Metro South Health (Brisbane) and Griffith University—and is led by Professor Tim Geraghty.
The project is supported by a nationally representative Steering Committee, comprised of clinicians, SCI consumer organisations, researchers and other key stakeholders. It is also guided by a Consumer Advisory Committee comprising 10 people with lived experience of SCI from across Australia. This ensures that lived experience meaningfully informs every stage of the work.
An e-Delphi study has recently been completed to identify national priority areas. While analysis is underway, three key areas have emerged as initial priorities:
- Employment
- Skin health
- Bowel management
The next phase of the project will involve conducting an environmental scan to understand the current Australian landscape across these areas. Following this, expert working groups will be established for each focus area. These groups will collaborate with people with lived experience, clinicians, researchers and system stakeholders to co-design practical and sustainable improvements.
This project represents a unique opportunity to align data, lived experience and collaborative expertise to drive meaningful change for people with SCI across Australia.
To stay informed, you can sign up to the mailing list here.
You can also visit the Aus-InSCI video here, the website here and LinkedIn site here.
For further information, please contact: Aus-InSCI_TranslationProject@health.qld.gov.au



